A mother from Pennsylvania has been working to spread information about finding a couple for her 7-year-old son since October 2021, when she learned that he has a rare autoimmune disease that affects only one in 1.6 million people.

On this Mother’s Day Missy Ramirez shared her story of fear and hope for her son, the battle of Jax Ramirez with IPEX.

The only possible treatment is a bone marrow transplant, and of the millions of people registered for donation, none compare to Jax.

“It is very difficult for people of color to find someone just because of the lack of diversity in the way of donors,” Ramirez said.

Due to the uncertainty of the disease, Missy said they should move fast.

“We have to find a match while Jax is healthy and it turned out to be harder than I thought, but I’m not going to give up hope,” Ramirez said.

Over the past 7 months, she and her family have held numerous donor promotions and helped nearly 4,000 people sign up to become potential donors.

“Our mission is not only to save Jax, but to save everyone else – 18,000 people today are looking for their perfect salvation,” Ramirez said.

To register, send the text “JAX” to the number 61474, and a set of smears will be sent to your home.

You may never be with someone who needs a blood or bone marrow donor, or you can save lives.

“I wake up every day and see him jump up and smile, but deep down I know it can be taken away from me the next day,” Ramirez said.

For details on future donor activities live, follow the “Be a Match for Jax” section. Facebook, Instagram and Ticket.